National Sjogren’s Syndrome Awareness Month

Sjögren’s Syndrome is a systemic autoimmune disease where the body’s immune system mistakenly attacks its own moisture-producing glands, leading to symptoms like dry eyes, dry mouth, fatigue, and chronic pain. It can also affect major organs and other body systems, making it a complex and often misunderstood condition.

Quick Facts

When is it? April
Tagged as: Health Awareness, Autoimmune Disease Awareness
What’s the hashtag? #ThisIsSjögrens
When was it founded? 1998
Who founded it? Congresswoman Louise Slaughter

History of National Sjögren’s Syndrome Awareness Month

The awareness month was established in 1998 when Congresswoman Louise Slaughter introduced it into the Congressional Record. It aims to educate the public about Sjögren’s Syndrome and support patients through awareness campaigns. The disease itself was first described in 1933 by Swedish ophthalmologist Henrik Sjögren, who identified its hallmark symptoms of dry eyes and mouth.

Timeline

1933: Henrik Sjögren first describes the disease.
1951: Expanded research by Sjögren brings global attention to the condition.
1998: National Sjögren’s Awareness Month is officially established.
2010: U.K. Primary Sjögren’s Syndrome Registry is created for research purposes.

National Sjögren’s Syndrome Awareness Month Dates

Year	Month and Date	Day
2025	April 1	Tuesday
2026	April 1	Wednesday
2027	April 1	Thursday
2028	April 1	Saturday
2029	April 1	Sunday
2030	April 1	Monday

Observed During National Sjögren’s Syndrome Awareness Month

This month-long event is observed to highlight the challenges faced by those living with Sjögren’s Syndrome. Through patient stories, social media campaigns like #ThisIsSjögrens, and community events, the aim is to foster understanding and empathy for this invisible disease. The awareness month also includes fundraising walks and virtual conferences to support research and education.

Fun Facts About National Sjögren’s Syndrome Awareness Month

Nine out of ten people diagnosed with Sjögren’s are women.
It is one of the most prevalent autoimmune diseases, affecting approximately four million Americans.
The disease is often misdiagnosed due to its overlapping symptoms with other conditions.

Quiz

What glands are primarily affected by Sjögren’s Syndrome?
Who first described the disease in detail?
What is the primary symptom of Sjögren’s Syndrome?
When was National Sjögren’s Awareness Month officially established?
What percentage of patients with Sjögren’s are female?

(Answers: Moisture-producing glands; Henrik Sjögren; Dry eyes/dry mouth; 1998; 90%)

FAQs

What causes Sjögren’s Syndrome?
The exact cause is unknown, but genetic predisposition combined with environmental triggers like infections may play a role.

Can children develop Sjögren’s Syndrome?
Yes, though rare, children can develop Juvenile Sjögren’s Syndrome.

Is there a cure for Sjögren’s Syndrome?
No, but treatments exist to manage symptoms and improve quality of life.

How common is Sjögren’s Syndrome?
It affects around four million Americans, making it one of the most common autoimmune diseases.

Does it affect life expectancy?
While life expectancy isn’t usually shortened, quality of life can be significantly impacted.

Importance of National Sjögren’s Syndrome Awareness Month

This awareness month highlights an often-overlooked autoimmune disease, fostering better understanding among the public and healthcare professionals alike. It provides a platform for patients to share their experiences and connect with others facing similar challenges. Additionally, it drives research efforts toward improved treatments and potential cures.