National Rare Disease Day: A Day to Raise Awareness

Rare Disease Day is a globally recognized movement dedicated to raising awareness about rare diseases and advocating for equitable healthcare, diagnosis, and treatment for individuals affected by these conditions. It serves as a platform to unite patients, families, caregivers, healthcare professionals, and advocates in the fight for better understanding and support for rare diseases.

Quick Facts

• When is it? February 28 (or February 29 in leap years).
• Tagged as: Awareness, Advocacy, Healthcare Equity.
• What’s the hashtag? #RareDiseaseDay.
• When was it founded? 2008.
• Who founded it? European Organisation for Rare Diseases (EURORDIS).

History of Rare Disease Day

Rare Disease Day was first observed on February 29, 2008—a symbolic date chosen for its rarity. Initially celebrated in Europe and Canada, the day quickly gained global traction. By 2009, it expanded to include countries like the United States, Australia, and China. Today, it is observed in over 100 countries worldwide, with events ranging from advocacy campaigns to educational seminars. The initiative highlights the challenges faced by individuals with rare diseases and aims to improve access to healthcare and social support.

Timeline

• 2008: First Rare Disease Day observed in Europe and Canada.
• 2009: Expanded globally to countries like the U.S., China, and Australia.
• 2013: U.S. President Barack Obama officially supported the day.
• 2014: Participation grew to 84 countries with over 400 events worldwide.
• 2024: Celebrated in more than 100 countries with thousands of events.

Dates by Year (2025–2030)

Year	Month and Date	Day
2025	February 28	Friday
2026	February 28	Saturday
2027	February 28	Sunday
2028	February 28	Monday
2029	February 28	Wednesday
2030	February 28	Thursday

Observed

Rare Disease Day is marked by various activities such as illuminating landmarks in vibrant colors, organizing walks and conferences, sharing personal stories on social media using the hashtag #RareDiseaseDay, and advocating for policy changes to improve lives.

Fun Facts About Rare Disease Day

• Over 300 million people worldwide live with a rare disease.
• Approximately 80% of rare diseases are genetic in origin.
• The zebra is often used as a symbol for rare diseases due to its uniqueness.

Quiz

1. When is Rare Disease Day observed?

• A) February 14
• B) February 28
• C) March 1
  (Answer: B)

1. What percentage of rare diseases are genetic?

• A) 50%
• B) 80%
• C) 30%
  (Answer: B)

1. What animal symbolizes rare diseases?

• A) Lion
• B) Zebra
• C) Dolphin
  (Answer: B)

FAQs

• What qualifies as a rare disease? In the U.S., a disease affecting fewer than 200,000 people annually.
• How many rare diseases exist? Over 7,000 have been identified globally.
• Why is Rare Disease Day important? It raises awareness and promotes research for conditions often overlooked.

Related Topics

• Orphan Drug Act
• Genetic Disorders
• Healthcare Advocacy
• Patient Support Networks
• Global Health Campaigns